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Listening to the patient – surveys to accurately assess disease impact | PainSolve
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Updates & Features

Listening to the patient – Surveys to Accurately Assess Disease Impact

April 2019 

PainSolve Editorial Team

Strategies for measuring patient experience include patient-reported experience measures and patient-reported outcomes, which encompass surveys, interviews, focus groups, and patient stories, and also a combined use of both generic and disease-specific measures. The extent to which each method is representative of the population varies depending on the method used (Figure 1). For example, more descriptive methods, such as interviews or patient stories, can provide more in-depth information but may not be as generalisable.

Surveys are commonly used to assess patient experience as they have high generalisability and there are many existing, validated surveys that can be used or adapted for a particular context. On the downside, surveys can be less descriptive than other methods, may be unsuitable for certain patients, and the extent to which their use results in improved patient experience is unknown (i.e. there is currently little comparative evidence suggesting which strategies are more effective for measuring experience or monitoring changes). Table 1 provides a summary of the main benefits and drawbacks associated with the use of surveys. Important factors to consider when using surveys for measuring patient experience include: administration (the methods used to collect the data), content (of the questionnaire, rating scale, etc.), and the timeframe (the timing of data collection).1

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